MaLeah Jimenez Fundraiser

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MaLeah Jimenez had dealt with dizzy spells and weakness most of her life, without any medical explanation.  In January, however, her husband noticed she wasn’t speaking normally and rushed her to the ER.  Tests revealed she had a hypothalamic tumor on her brain.  Due to the risky nature of this type of tumor, MaLeah’s care has been transferred to the Mayo Clinic in Rochester, MN.

The proceeds from this fundraiser will go toward travel, hotel, and medical bills related to her treatment plan and upcoming surgery.  The young couple appreciates your thoughts and prayers, love, and support.

  • a:3:{s:4:"date";s:10:"04/09/2022";s:5:"title";s:31:"EVENT IS TOMORROW! PLEASE READ!";s:7:"details";s:1802:"ONE DAY AWAY FROM THE EVENT!! READ IMPORTANT INFO BELOW! We are so excited! Again, our FM community is amazing, we truly are a community who comes together in all circumstances. We are blessed! Here are some things to remember: TIME: Doors will open at 2pm for the event, signs will be posted to help you find your way to the venue. Event ends at 6pm. AUCTION: The on-line silent auction will continue at the event until 5pm. Winning bidders will take their items home from the event. If the highest bidder does not claim their item, the second highest bidder will be notified. We cannot ship items. TRIVIA: We will have two trivia games with prizes! All of you who have been keeping up with posts on the Facebook event page, and looking through the auction items, will have a certain advantage... Friendly volunteers will assist you if you want to set up an account to donate to MaLeah (donations on Lend A Hand Up are boosted 20%!). If you would like to make cash donations, we have keychains for sale and will have fresh dessert breads as well for "free-will" donations. There will also be a couple of money trees you can help "grow" for MaLeah! Checks should be made out to MaLeah and given to her directly at the event. More items keep showing up on the auction page! Keep checking the auction page for new items and to bump up your bids to win items! You have time left to buy a T-Shirt, the on-line store closes Monday! Click on the link here or go to https://www.bonfire.com/maleah-jimenez-fundraiser/ Harmon Entertainment will be the DJ and MC for trivia, the live auction, speeches and announcements. GP's Greek Kitchen will be providing food for us, so come ready to eat yummy food as well! Contact Kim if you have any questions about tomorrow's event!";}

    EVENT IS TOMORROW! PLEASE READ!

    04/09/2022

    ONE DAY AWAY FROM THE EVENT!! READ IMPORTANT INFO BELOW!

    We are so excited! Again, our FM community is amazing, we truly are a community who comes together in all circumstances. We are blessed!

    Here are some things to remember:

    TIME: Doors will open at 2pm for the event, signs will be posted to help you find your way to the venue. Event ends at 6pm.

    AUCTION: The on-line silent auction will continue at the event until 5pm. Winning bidders will take their items home from the event. If the highest bidder does not claim their item, the second highest bidder will be notified. We cannot ship items.

    TRIVIA: We will have two trivia games with prizes! All of you who have been keeping up with posts on the Facebook event page, and looking through the auction items, will have a certain advantage…

    Friendly volunteers will assist you if you want to set up an account to donate to MaLeah (donations on Lend A Hand Up are boosted 20%!). If you would like to make cash donations, we have keychains for sale and will have fresh dessert breads as well for “free-will” donations. There will also be a couple of money trees you can help “grow” for MaLeah! Checks should be made out to MaLeah and given to her directly at the event.

    More items keep showing up on the auction page! Keep checking the auction page for new items and to bump up your bids to win items!

    You have time left to buy a T-Shirt, the on-line store closes Monday! Click on the link here or go to https://www.bonfire.com/maleah-jimenez-fundraiser/

    Harmon Entertainment will be the DJ and MC for trivia, the live auction, speeches and announcements.

    GP’s Greek Kitchen will be providing food for us, so come ready to eat yummy food as well!

    Contact Kim if you have any questions about tomorrow’s event!

  • a:3:{s:4:"date";s:0:"";s:5:"title";s:60:"Lots of good: some bad: but most importantly (to us) ANSWERS";s:7:"details";s:2720:"Can I start by saying, Mayo Clinic is PHENOMENAL. So organized. So kind. So good. We feel SO lucky. They actually were able to adjust my appointments for the week all into yesterday and today. So we’re dead tired BUT. It’s so worth it. The first incredible joy: I do NOT have cancer. This was so overwhelming to finally get the answer. We’ve been waiting (impatiently) for my body to stop fighting an infection as we can not biopsy the mass. Given all symptoms they were concerned it may not be HH and could be a Malignant Glioma. Praise be that it is not. The “bad” news: which is relative. I still feel lucky. My Hypothalmic Hamartoma case still looks odd compared to most children’s they see so they will be presenting my case to a board of Tumor specialists on Monday. They plan to bring on board doctors across the USA who have dealt with HH directly. No one would like to operate at this time as it is so inaccessible and would affect my quality of life. They are all very eager to help, Which feels so nice. I feel blessed that my diagnosis is rare and unique enough that they are so fascinated with it. I feel well loved and taken care of. I have spent much of my life not having answers and/or resources to figure out why I felt so “off” To be made a priority throughout the clinic was validating that my symptoms are very real. I’m not crazy. Results for my EEG show brain activity for seizures but one did not occur during the monitoring. Because of this I will be headed back to mayo end of the month for a week long study. Their goal is to oddly enough catch my various seizures (they’ve noted 3 different ones) so that when we try a medication afterwards we know what we are trying to combat. We are comfortable with my “giddy” seizures. They are short, happy, and euphoric. They happen multiple times a day and only for a few seconds. The other two types are what we’ll work towards alleviating. We will also be following up with endocrinology and genetics as we someday would like to add to our family being that my diagnosis is genetically related to Cas’s (though we’re not blood related (doctors think this is beyond wild and get quite a kick out of it)) it’s a very real concern that we could have potential health problems arise in future children. Though we have a very very long road ahead of us and there is not a clear end in sight we rest in knowing that I’m cared for and being monitored in the safest of ways. So we carry on and get some rest as we enjoy some time together before heading back to Fargo. All my love 💕";}

    Lots of good: some bad: but most importantly (to us) ANSWERS

    Can I start by saying, Mayo Clinic is PHENOMENAL. So organized. So kind. So good. We feel SO lucky. They actually were able to adjust my appointments for the week all into yesterday and today.
    So we’re dead tired

    BUT. It’s so worth it.

    The first incredible joy: I do NOT have cancer. This was so overwhelming to finally get the answer.
    We’ve been waiting (impatiently) for my body to stop fighting an infection as we can not biopsy the mass.
    Given all symptoms they were concerned it may not be HH and could be a Malignant Glioma. Praise be that it is not.
    The “bad” news: which is relative. I still feel lucky.

    My Hypothalmic Hamartoma case still looks odd compared to most children’s they see so they will be presenting my case to a board of Tumor specialists on Monday. They plan to bring on board doctors across the USA who have dealt with HH directly. No one would like to operate at this time as it is so inaccessible and would affect my quality of life.
    They are all very eager to help, Which feels so nice. I feel blessed that my diagnosis is rare and unique enough that they are so fascinated with it. I feel well loved and taken care of. I have spent much of my life not having answers and/or resources to figure out why I felt so “off”
    To be made a priority throughout the clinic was validating that my symptoms are very real. I’m not crazy.
    Results for my EEG show brain activity for seizures but one did not occur during the monitoring.
    Because of this I will be headed back to mayo end of the month for a week long study.
    Their goal is to oddly enough catch my various seizures (they’ve noted 3 different ones) so that when we try a medication afterwards we know what we are trying to combat. We are comfortable with my “giddy” seizures. They are short, happy, and euphoric. They happen multiple times a day and only for a few seconds. The other two types are what we’ll work towards alleviating.
    We will also be following up with endocrinology and genetics as we someday would like to add to our family being that my diagnosis is genetically related to Cas’s (though we’re not blood related (doctors think this is beyond wild and get quite a kick out of it)) it’s a very real concern that we could have potential health problems arise in future children. Though we have a very very long road ahead of us and there is not a clear end in sight we rest in knowing that I’m cared for and being monitored in the safest of ways.
    So we carry on and get some rest as we enjoy some time together before heading back to Fargo.
    All my love 💕

  • a:3:{s:4:"date";s:0:"";s:5:"title";s:17:"Gelastic Seizures";s:7:"details";s:515:"Today (March 7th) Our appointments entailed a long EEG with sleep study and an MRI. The EEG was to gauge how often seizures are occurring (As sometimes I'm unaware of them) and what the common triggers are, if any. The MRI is to confirm there is no growth and to establish an MRI with Mayo Clinic. They have been simply the best, so kind, efficient and truly providing us the best care. In a really stressful time, I couldn't feel more loved. We will update as our test results become known. All my love 💕";}

    Gelastic Seizures

    Today (March 7th) Our appointments entailed a long EEG with sleep study and an MRI. The EEG was to gauge how often seizures are occurring (As sometimes I’m unaware of them) and what the common triggers are, if any. The MRI is to confirm there is no growth and to establish an MRI with Mayo Clinic.
    They have been simply the best, so kind, efficient and truly providing us the best care. In a really stressful time, I couldn’t feel more loved.

    We will update as our test results become known.
    All my love 💕

  • a:3:{s:4:"date";s:0:"";s:5:"title";s:17:"Mayo Appointments";s:7:"details";s:1267:"Here is an update (or two) from MaLeah's Socials: We have our next follow up appointments with Mayo scheduled for March 7-9. I’ll be discussing procedures with oncology and the pediatrics unit to see what best fits for my quality of life. They will also be doing an early MRI to gauge if there’s ANY growth (rooting for nothing🎉) Because of the tumors orientation they won’t be performing a biopsy on the tissue. It’s too risky. We’ll be checking other symptoms like white blood cell counts now thay I’m finally not dealing with wisdom tooth infection (we hope anyways, follow up surgery on Monday because a piece was missed 😝🙃) Fun fact for the day: though my tumor is INCREDIBLY rare, it’s genetically related to another INCREDIBLY rare disease… Moyamoya. Brownie points if you remember who we love the most who has that! (Cas ❤️)The doctor was like oh that makes perfect sense actually and we were like nope! We’re not related haha! Just a marvelously wild coincidence. I’m in good spirits, but tired. Some days I have lots of energy and feel like nothing has changed. Others my emotions are just a lot. I’m grateful for the life I have and those who love me ❤️ All my love💕 more updates after those appointments.";}

    Mayo Appointments

    Here is an update (or two) from MaLeah’s Socials:
    We have our next follow up appointments with Mayo scheduled for March 7-9.
    I’ll be discussing procedures with oncology and the pediatrics unit to see what best fits for my quality of life. They will also be doing an early MRI to gauge if there’s ANY growth (rooting for nothing🎉)
    Because of the tumors orientation they won’t be performing a biopsy on the tissue. It’s too risky. We’ll be checking other symptoms like white blood cell counts now thay I’m finally not dealing with wisdom tooth infection (we hope anyways, follow up surgery on Monday because a piece was missed 😝🙃)
    Fun fact for the day: though my tumor is INCREDIBLY rare, it’s genetically related to another INCREDIBLY rare disease… Moyamoya. Brownie points if you remember who we love the most who has that! (Cas ❤️)The doctor was like oh that makes perfect sense actually and we were like nope! We’re not related haha! Just a marvelously wild coincidence.
    I’m in good spirits, but tired. Some days I have lots of energy and feel like nothing has changed. Others my emotions are just a lot. I’m grateful for the life I have and those who love me ❤️

    All my love💕 more updates after those appointments.

  • a:3:{s:4:"date";s:0:"";s:5:"title";s:23:"Mayo Clinic Appointment";s:7:"details";s:2392:"Here is an update from MaLeah's Socials. MaLeah was laid off from work due to economical reasons as of 2-2-22. This is now an additional burden the couple is facing. For the people who have held hope when I’ve had none: We just finished our first very lengthy Mayo Clinic appointment. And while we have LOTS to process. Losses to process. Life adjustments to process. We also have joy. I truly believe I was given the best doctor for my situation at Mayo, and I trust his expertise wholeheartedly. Because of this, we are trusting his request for another opinion as well as trusting his instinct that surgery is too risky without knowing the rate of growth for my tumor. It may come in the future, but for the time being it is not right now. Given my work and lack of insurance situation, this is actually a blessing. We have been fully prepared for the surgery to come as soon as we were made aware of the mass. It would have alleviated my symptoms such as dizziness, seizures, infertility, hormone/immunity (or lack thereof) , anger, speech issues and numbness. Unfortunately mine [mass] is a little different than most peoples (though the tumor itself is rare). Most hypothalamic tumors sit on the hypothalamus. Making removal risky, but possible. Mine is so deeply connected, it appears they’ve almost grown together. Which would make sense as it’s believed I’ve carried it with me since childhood. Because of this, a surgery has a darn near guarantee of significant brain damage. There is no clean way to remove it. Leaving us with uncertainty for my quality of life if we operate. We have made the hard decision to allow these symptoms to continue in the hopes that we learn to manage them better and better every day. We do have a follow up in about 3 months where they will measure the growth rate. From there they will decide if the surgery is necessary or if we need to move to plan B. Severe symptom management. They have monitored my seizures to know that they are not harming my brain and as long as I can handle their side effects, they are safe. We were told that “we’re not out of the woods, but it’s finally safe to be cautiously optimistic” So while this isn’t the ideal. It’s good❤️ We plan to hold an auction and benefit in the near future as my medical journey is not over. Shirts will also be finished soon. All my love 💕";}

    Mayo Clinic Appointment

    Here is an update from MaLeah’s Socials.

    MaLeah was laid off from work due to economical reasons as of 2-2-22. This is now an additional burden the couple is facing.

    For the people who have held hope when I’ve had none:
    We just finished our first very lengthy Mayo Clinic appointment. And while we have LOTS to process. Losses to process. Life adjustments to process.
    We also have joy.
    I truly believe I was given the best doctor for my situation at Mayo, and I trust his expertise wholeheartedly. Because of this, we are trusting his request for another opinion as well as trusting his instinct that surgery is too risky without knowing the rate of growth for my tumor. It may come in the future, but for the time being it is not right now. Given my work and lack of insurance situation, this is actually a blessing.
    We have been fully prepared for the surgery to come as soon as we were made aware of the mass.
    It would have alleviated my symptoms such as dizziness, seizures, infertility, hormone/immunity (or lack thereof) , anger, speech issues and numbness.
    Unfortunately mine [mass] is a little different than most peoples (though the tumor itself is rare). Most hypothalamic tumors sit on the hypothalamus. Making removal risky, but possible. Mine is so deeply connected, it appears they’ve almost grown together. Which would make sense as it’s believed I’ve carried it with me since childhood.
    Because of this, a surgery has a darn near guarantee of significant brain damage. There is no clean way to remove it.
    Leaving us with uncertainty for my quality of life if we operate.
    We have made the hard decision to allow these symptoms to continue in the hopes that we learn to manage them better and better every day.
    We do have a follow up in about 3 months where they will measure the growth rate. From there they will decide if the surgery is necessary or if we need to move to plan B. Severe symptom management.
    They have monitored my seizures to know that they are not harming my brain and as long as I can handle their side effects, they are safe.
    We were told that “we’re not out of the woods, but it’s finally safe to be cautiously optimistic”
    So while this isn’t the ideal. It’s good❤️
    We plan to hold an auction and benefit in the near future as my medical journey is not over. Shirts will also be finished soon.
    All my love 💕

Comments

  1. Marilyn McDougall

    MaLeah, can you pm me your address, please. I’m so sorry you’ve got this. You’ve got lots of friends who care about you and are praying for you. Keep trusting Jesus.

  2. Jan Ferris

    It was wonderful to see you! Praying for you. 💜💜♥️♥️

  3. Andrea

    Hello MaLeah, it is wonderful to see an out pouring of support for you and your husband. I have a medical team at Mayo and am.so grateful for their care and success in removing my brain tumor via craniotomy. You are in excellent hands. My surgical team was led by Dr. Link. I have learned so much in my year of recovery and would be happy to visit with you. Keeping you in my prayers.
    Andrea
    701.361.3873

  4. Jan Ferris

    Praying for you dear MaLeah and your family. ♥️♥️🙏🙏

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If you would like to donate items to the upcoming auction, or sign up to volunteer at the event on April 10th, please contact Kim at [email protected]

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Comments

Comments

  1. Marilyn McDougall

    MaLeah, can you pm me your address, please. I’m so sorry you’ve got this. You’ve got lots of friends who care about you and are praying for you. Keep trusting Jesus.

  2. Jan Ferris

    It was wonderful to see you! Praying for you. 💜💜♥️♥️

  3. Andrea

    Hello MaLeah, it is wonderful to see an out pouring of support for you and your husband. I have a medical team at Mayo and am.so grateful for their care and success in removing my brain tumor via craniotomy. You are in excellent hands. My surgical team was led by Dr. Link. I have learned so much in my year of recovery and would be happy to visit with you. Keeping you in my prayers.
    Andrea
    701.361.3873

  4. Jan Ferris

    Praying for you dear MaLeah and your family. ♥️♥️🙏🙏

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