Charlie Dame Fundraiser
In April 2019 our world was rocked when Charlie was diagnosed with Stage 4 Glioblastoma. Charlie underwent surgery at Mayo Clinic in June 2019 that successfully removed 95% of his brain tumor. After surgery he went through chemotherapy and radiation treatments in addition to ongoing treatment through an Optune device to halt regrowth of the tumor. While 2020 was a hard year due to the pandemic, Charlie saw positive results from the treatment.
In January of 2021 a follow-up MRI showed that the tumor had come back. Charlie underwent another surgery at Sanford to remove the tumor regrowth and he again started chemotherapy treatments to slow any tumor regrowth. Unfortunately, his most recent MRI in June showed that the tumor is aggressively regrowing and his care team at Roger Maris Cancer Center gave a devastating prognosis of 3 to 6 months to Charlie. Charlie is currently unable to work and is continuing chemo treatments with another MRI scheduled for mid-September to check the growth of the tumor.
To help support Charlie and his family with medical and other expenses, our IT Administration team at BCBSND is hosting this online campaign through Lend A Hand Up to raise financial help and hope for Charlie.
September 2nd - Thank you!
Charlie has had a good week overall but is still tired. His next MRI is scheduled for 9/13 and he will meet again with the oncologist on 9/15. We’ll post another update after his appointments.
Thank you for all of the words of encouragement and support for Charlie, Karen and Courteney. They have been reading the comments this week and are overwhelmed with the generosity and support from everyone.
MRI Results - September 15th
Charlie had his follow up MRI on Monday this week and met with his oncologist today. Unfortunately the MRI results showed that the tumor growth has continued to progress so the chemo treatments have not been effective. His doctors advised that there are no other treatment options and the prognosis currently is no more than 6 months, which is very sad news. Charlie and his family will be meeting with the palliative care team (Hospice) in the next few weeks to discuss ongoing support and care.
Charlie, Karen and Courteney are so appreciative of all the love and support from everyone and want you all to know how much they appreciate your support. They know that each day they have together is a blessing and are going to focus on making the most of the time they have together. Charlie and Karen welcome visitors and just ask that if you are not vaccinated that you wear a mask and only visit if you are feeling well.
Please continue to send them your wishes of encouragement and support and we ask that you keep them all in your thoughts and prayers.